Archive for the PANDAS Tag

PANDAS in the Wall Street Journal??

Be on the lookout for an article in the Wall Street Journal about PANDAS. Our Missouri PANDAS/PANS co-president Kelly Wooldridge talks about her family’s experience and the upcoming Midwest Conference. We also have an article coming out July 22 in West NewsMagazine! Kelly and I sat down with features reporter, Bonnie Krueger, to give her a glimpse of the exciting
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PANDAS education confirmed in St. Louis

If you are waiting for a way for you and/or your physician to learn more about PANDAS/PANS, look no further! The Missouri PANDAS/PANS Parent Association (that’s a tongue twister)has confirmed a two day conference including presentations by Susan Swedo, MD (yes, there will be results from the NIMH IVIG study presented) as well as Dr. Cunningham among others. Physicians from
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Long overdue update for Joshua

We have been so very busy that I have been unable to keep up with blogs. Tonight I will try and give our update, exciting as always. On July 17, I took Joshua and our 4 year old, Noah, to see an immunologist who specializes in psychoneuroimmunology. I knew our younger child had horrid allergies last year and figured I
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How to teach a child to swallow a pill

One hurdle we had to overcome with Joshua was the fact that he was very orally defensive. This means he couldn’t tolerate anything in his mouth. Dental trips were difficult for him though we had an amazing dentist who took his time and worked with Joshua slowly. I learned from our dentist, Dr. Bubenik, that when Joshua was rushed, he
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After the IVIG to treat PANDAS

So I thought I would write a quick note about symptoms of PANDAS after IVIG…long term. I don’t believe it is a clear cut answer for everyone. At first, I hoped that we would get just one and be done….but that hasn’t been our experience. Everything didn’t just go away though after a few months he was a completely different,
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PANDAS, PANS, and IVIG treatment

I have been getting lots of great emails from people all over the world struggling to get help for their children. I get a lot of questions about PANDAS, PANS and IVIG. IVIG was our choice of treatment for Joshua. One that we feel literally saved his life. Many physicians elude to the fact that it may not be safe
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