Archive for April, 2012

After the IVIG to treat PANDAS

So I thought I would write a quick note about symptoms of PANDAS after IVIG…long term. I don’t believe it is a clear cut answer for everyone. At first, I hoped that we would get just one and be done….but that hasn’t been our experience. Everything didn’t just go away though after a few months he was a completely different,
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PANDAS symptoms after IVIG

I thought with all this talk of how IVIG works, we should talk about what happens to symptoms of PANDAS after IVIG treatment. Our first IVIG I think I was expecting a slow recovery. I had heard the term “turning back the pages” to describe outbursts of PANDAS symptoms after IVIG. I had read that it could last a few
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PANDAS, PANS, and IVIG treatment

I have been getting lots of great emails from people all over the world struggling to get help for their children. I get a lot of questions about PANDAS, PANS and IVIG. IVIG was our choice of treatment for Joshua. One that we feel literally saved his life. Many physicians elude to the fact that it may not be safe
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Tests for PANDAS

I thought it may be helpful to review some possible tests that are being used to determine whether or not a child has PANDAS. Though there are many tests for PANDAS to assist in diagnosis, nothing replaces a good history both medically and behaviorally. Rapid strep: A rapid strep is the test used in most pediatricians offices when a child
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PANDAS or PANS? What’s the difference?

In February, the white paper for PANS/PANDAS was released. There seemed to be some confusion as to whether the PANDAS diagnosis had been replaced by PANS. In reality, it has not. From what I understand, PANS (pediatric acute-onset neuropsychiatric syndrome), is the larger umbrella. PANDAS (pediatric autoimmune neuropsychiatric disorders associated with strep), falls under that umbrella because we know the
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